Hidradenitis suppurativa, \u010dasto naz\u00fdvan\u00e1 Verneuilova choroba, je chronick\u00e9 a extr\u00e9mn\u011b oslabuj\u00edc\u00ed dermatologick\u00e9 onemocn\u011bn\u00ed, kter\u00e9 postihuje tis\u00edce lid\u00ed na cel\u00e9m sv\u011bt\u011b, \u010dasto bez spr\u00e1vn\u00e9 diagn\u00f3zy.<\/p>\n\n\n\n
Toto z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed, kter\u00e9 je \u0161irok\u00e9 ve\u0159ejnosti st\u00e1le do zna\u010dn\u00e9 m\u00edry nezn\u00e1m\u00e9, m\u00e1 nicm\u00e9n\u011b v\u00fdznamn\u00fd dopad na kvalitu \u017eivota, a to jak fyzickou, tak psychickou.<\/p>\n\n\n\n
Pochopen\u00ed jeho mechanism\u016f, symptom\u016f a r\u016fzn\u00fdch l\u00e9\u010debn\u00fdch postup\u016f je nezbytn\u00e9 pro lep\u0161\u00ed \u017eivot s t\u00edmto bolestiv\u00fdm a p\u0159etrv\u00e1vaj\u00edc\u00edm ko\u017en\u00edm onemocn\u011bn\u00edm.<\/p>\n\n\n\n
Chronick\u00e9 a bolestiv\u00e9 ko\u017en\u00ed onemocn\u011bn\u00ed (1\/12)
Hidradenitis suppurativa se prim\u00e1rn\u011b projevuje jako bolestiv\u00e9 uzl\u00edky pod k\u016f\u017e\u00ed, \u010dasto lokalizovan\u00e9 v oblastech bohat\u00fdch na apokrinn\u00ed potn\u00ed \u017el\u00e1zy: v podpa\u017e\u00ed, t\u0159\u00edslech, h\u00fd\u017ed\u00edch, doln\u00ed \u010d\u00e1sti zad, hrudn\u00edku nebo pod prsy. Tyto uzl\u00edky se vyv\u00edjej\u00ed v hnisav\u00e9 abscesy, n\u011bkdy s p\u00ed\u0161t\u011blemi, a zanech\u00e1vaj\u00ed po sob\u011b siln\u00e9 a n\u011bkdy znetvo\u0159uj\u00edc\u00ed jizvy. Onemocn\u011bn\u00ed postupuje v postupn\u00fdch exacerbac\u00edch, odd\u011blen\u00fdch obdob\u00edmi remise r\u016fzn\u00e9 d\u00e9lky, co\u017e jej \u010din\u00ed je\u0161t\u011b obt\u00ed\u017en\u011bji sn\u00e1\u0161eteln\u00fdm.<\/p>\n\n\n\n
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Siln\u00e1 bolest a soci\u00e1ln\u00ed dopad (12. 2.)
Bolest spojen\u00e1 s t\u00edmto stavem je \u010dasto popisov\u00e1na jako p\u00e1len\u00ed, pulzuj\u00edc\u00ed a n\u011bkdy nesnesiteln\u00e1. M\u016f\u017ee znemo\u017enit sp\u00e1nek, ch\u016fzi nebo dokonce no\u0161en\u00ed ur\u010dit\u00e9ho oble\u010den\u00ed. Krom\u011b fyzick\u00e9 bolesti m\u00e1 v\u00fdznamn\u00fd vliv i vn\u00edm\u00e1n\u00ed ostatn\u00edch. Vagin\u00e1ln\u00ed v\u00fdtok, nep\u0159\u00edjemn\u00e9 pachy a jizvy \u010din\u00ed tento stav obzvl\u00e1\u0161t\u011b vysiluj\u00edc\u00edm v soci\u00e1ln\u00edm prost\u0159ed\u00ed. Mnoho pacientek uv\u00e1d\u00ed ztr\u00e1tu sebev\u011bdom\u00ed a rostouc\u00ed izolaci.<\/p>\n\n\n\n
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P\u0159\u00ed\u010diny nezn\u00e1m\u00e9, rizikov\u00e9 faktory identifikovan\u00e9 (3\/12)
P\u0159esto\u017ee p\u0159esn\u00e9 p\u0159\u00ed\u010diny hidradenitis suppurativa z\u016fst\u00e1vaj\u00ed nedostate\u010dn\u011b objasn\u011bny, v\u011bdci se shoduj\u00ed, \u017ee se jedn\u00e1 o multifaktori\u00e1ln\u00ed onemocn\u011bn\u00ed. Zd\u00e1 se, \u017ee v\u00fdznamnou roli hraje genetick\u00e1 predispozice, jeliko\u017e t\u00e9m\u011b\u0159 t\u0159etina pacient\u016f m\u00e1 toto onemocn\u011bn\u00ed v rodinn\u00e9 anamn\u00e9ze. Kou\u0159en\u00ed a obezita jsou tak\u00e9 dob\u0159e zdokumentovan\u00fdmi faktory zhor\u0161uj\u00edc\u00edmi onemocn\u011bn\u00ed. Krom\u011b toho m\u016f\u017ee hormon\u00e1ln\u00ed nerovnov\u00e1ha, zejm\u00e9na b\u011bhem puberty nebo menstrua\u010dn\u00edho cyklu, vyvolat nebo zhor\u0161it vzplanut\u00ed onemocn\u011bn\u00ed.<\/p>\n\n\n\n
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L\u00e9\u010dba onemocn\u011bn\u00ed (4\/12)
St\u00e1le neexistuje definitivn\u00ed l\u00e9k na hidradenitis suppurativa. Existuje v\u0161ak n\u011bkolik mo\u017enost\u00ed l\u00e9\u010dby, kter\u00e9 mohou sn\u00ed\u017eit frekvenci a z\u00e1va\u017enost z\u00e1chvat\u016f. Antibiotika se \u010dasto p\u0159edepisuj\u00ed k boji proti sekund\u00e1rn\u00edm infekc\u00edm a protiz\u00e1n\u011btliv\u00e9 l\u00e9ky a kortikosteroidy mohou zm\u00edrnit z\u00e1n\u011bt. Hormon\u00e1ln\u00ed l\u00e9\u010dba (antiandrogeny) prok\u00e1zala u n\u011bkter\u00fdch \u017een ur\u010ditou \u00fa\u010dinnost. V z\u00e1va\u017en\u00fdch p\u0159\u00edpadech nab\u00edzej\u00ed novou nad\u011bji biologick\u00e9 l\u00e9ky \u2013 jako jsou anti-TNF l\u00e9ky (adalimumab). V extr\u00e9mn\u00edch p\u0159\u00edpadech m\u016f\u017ee b\u00fdt nutn\u00e1 operace k odstran\u011bn\u00ed infikovan\u00e9 tk\u00e1n\u011b.<\/p>\n\n\n\n
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Hygienick\u00e9 produkty zm\u00edr\u0148uj\u00edc\u00ed bolest (5\/12)
Denn\u00ed n\u00e1vyky hraj\u00ed kl\u00ed\u010dovou roli v prevenci vzplanut\u00ed. Doporu\u010duj\u00ed se jemn\u00e9 a pravideln\u00e9 hygienick\u00e9 n\u00e1vyky a vyh\u00fdb\u00e1n\u00ed se dr\u00e1\u017ediv\u00fdm produkt\u016fm p\u00e9\u010de o ple\u0165. Voln\u00e9 bavln\u011bn\u00e9 oble\u010den\u00ed pom\u00e1h\u00e1 sni\u017eovat t\u0159en\u00ed a podr\u00e1\u017ed\u011bn\u00ed. D\u016fle\u017eit\u00e9 je tak\u00e9 vyh\u00fdbat se deodorant\u016fm na b\u00e1zi alkoholu nebo parf\u00e9movan\u00fdm produkt\u016fm, kter\u00e9 mohou dr\u00e1\u017edit citliv\u00e9 oblasti. A kone\u010dn\u011b, udr\u017eov\u00e1n\u00ed zdrav\u00e9 hmotnosti, vyh\u00fdb\u00e1n\u00ed se tab\u00e1ku a omezen\u00ed nadm\u011brn\u00e9ho pocen\u00ed m\u016f\u017ee pomoci sn\u00ed\u017eit frekvenci vzplanut\u00ed.<\/p>\n\n\n\n
\u00a9 Shutterstock<\/p>\n\n\n\n
Nep\u0159enosn\u00e1 onemocn\u011bn\u00ed a imunitn\u00ed dysfunkce (6\/12)
Na rozd\u00edl od v\u0161eobecn\u00e9ho p\u0159esv\u011bd\u010den\u00ed nen\u00ed hidradenitis suppurativa naka\u017eliv\u00e1. Nep\u0159en\u00e1\u0161\u00ed se p\u0159\u00edm\u00fdm kontaktem, krv\u00ed ani p\u0159edm\u011bty denn\u00ed pot\u0159eby. Jedn\u00e1 se o onemocn\u011bn\u00ed spojen\u00e9 s hyperaktivn\u00edm imunitn\u00edm syst\u00e9mem, kter\u00e9 zp\u016fsobuje zablokov\u00e1n\u00ed vlasov\u00fdch folikul\u016f a hlubok\u00fd z\u00e1n\u011bt. Tento proces vede k lok\u00e1ln\u00ed superinfekci a tvorb\u011b recidivuj\u00edc\u00edch absces\u016f, ale nep\u0159edstavuje hrozbu pro okol\u00ed pacienta.<\/p>\n\n\n\n
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Psychologick\u00fd dopad nemoci (12. 7.)
Psychologick\u00e9 d\u016fsledky jsou zna\u010dn\u00e9. P\u0159etrv\u00e1vaj\u00edc\u00ed bolest, fyzick\u00e9 nepohodl\u00ed a stud za sv\u016fj vzhled mohou v\u00e9st k \u00fazkosti, depresi a soci\u00e1ln\u00ed izolaci. N\u011bkte\u0159\u00ed lid\u00e9 se c\u00edt\u00ed nepochopeni a dokonce stigmatizov\u00e1ni. Psychologick\u00e1 podpora, a\u0165 u\u017e individu\u00e1ln\u00ed nebo skupinov\u00e1, se \u010dasto doporu\u010duje, aby pacient\u016fm pomohla l\u00e9pe p\u0159ijmout svou nemoc a znovu z\u00edskat sebev\u011bdom\u00ed.<\/p>\n\n\n\n
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Komunikace a podpora pro lep\u0161\u00ed \u0159\u00edzen\u00ed (8\/12)
Vztah mezi pacientem a dermatologem je pro l\u00e9\u010dbu kl\u00ed\u010dov\u00fd. Udr\u017eov\u00e1n\u00ed otev\u0159en\u00e9 komunikace, vyjad\u0159ov\u00e1n\u00ed bolesti a obt\u00ed\u017e\u00ed a odpov\u00eddaj\u00edc\u00ed p\u0159izp\u016fsoben\u00ed l\u00e9\u010dby jsou kl\u00ed\u010dov\u00e9. \u00da\u010dast v podp\u016frn\u00fdch skupin\u00e1ch, a\u0165 u\u017e online nebo osobn\u011b, m\u016f\u017ee tak\u00e9 pomoci v boji proti izolaci a poskytnout p\u0159\u00edle\u017eitosti ke sd\u00edlen\u00ed praktick\u00fdch rad s ostatn\u00edmi, kte\u0159\u00ed se pot\u00fdkaj\u00ed se stejn\u00fdm onemocn\u011bn\u00edm.<\/p>\n\n\n\n
\u00a9 Shutterstock<\/p>\n\n\n\n
Zdrav\u00fd \u017eivotn\u00ed styl a zvl\u00e1d\u00e1n\u00ed symptom\u016f (12. 9.)
Vyv\u00e1\u017een\u00fd \u017eivotn\u00ed styl je jedn\u00edm z nejlep\u0161\u00edch zp\u016fsob\u016f, jak sn\u00ed\u017eit \u010detnost z\u00e1chvat\u016f. Doporu\u010duje se protiz\u00e1n\u011btliv\u00e1 strava bohat\u00e1 na ovoce, zeleninu a omega-3 mastn\u00e9 kyseliny a s n\u00edzk\u00fdm obsahem rafinovan\u00e9ho cukru. M\u00edrn\u00e1 fyzick\u00e1 aktivita zlep\u0161uje krevn\u00ed ob\u011bh a celkovou pohodu a z\u00e1rove\u0148 se vyh\u00fdb\u00e1 sedav\u00e9mu \u017eivotn\u00edmu stylu, kter\u00fd m\u016f\u017ee p\u0159\u00edznaky zhor\u0161ovat. A kone\u010dn\u011b, je z\u00e1sadn\u00ed identifikovat jednotliv\u00e9 spou\u0161t\u011b\u010de (stres, horko, strava), aby bylo mo\u017en\u00e9 je l\u00e9pe p\u0159edv\u00eddat.<\/p>\n\n\n\n
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Zvl\u00e1d\u00e1n\u00ed stresu a relaxace (10\/12)
Stres je zn\u00e1m\u00fdm faktorem zhor\u0161uj\u00edc\u00edm onemocn\u011bn\u00ed. Techniky jako meditace, j\u00f3ga, hlubok\u00e9 d\u00fdch\u00e1n\u00ed a sofrologie mohou sn\u00ed\u017eit z\u00e1n\u011bt sn\u00ed\u017een\u00edm produkce stresov\u00fdch hormon\u016f. V\u011bnov\u00e1n\u00ed \u010dasu sob\u011b, v\u011bnov\u00e1n\u00ed se relaxa\u010dn\u00edm aktivit\u00e1m a zaji\u0161t\u011bn\u00ed dobr\u00e9ho sp\u00e1nku p\u0159isp\u00edvaj\u00ed k lep\u0161\u00ed dlouhodob\u00e9 l\u00e9\u010db\u011b onemocn\u011bn\u00ed.<\/p>\n\n\n\n
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Zlep\u0161en\u00ed kvality \u017eivota (11\/12)
Navzdory chronick\u00e9 povaze onemocn\u011bn\u00ed se mnoha lidem poda\u0159\u00ed s komplexn\u00ed p\u00e9\u010d\u00ed znovu \u017e\u00edt napl\u0148uj\u00edc\u00ed \u017eivot. Terapeutick\u00e1 edukace, prevence relapsu a du\u0161evn\u00ed pohoda jsou ned\u00edlnou sou\u010d\u00e1st\u00ed l\u00e9\u010dby. Rodina a p\u0159\u00e1tel\u00e9 tak\u00e9 hraj\u00ed kl\u00ed\u010dovou roli v poskytov\u00e1n\u00ed motivace, podpory a pochopen\u00ed probl\u00e9m\u016f spojen\u00fdch s touto nemoc\u00ed.<\/p>\n\n\n\n
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Komplexn\u00ed p\u0159\u00edstup k efektivn\u00edmu \u0159\u00edzen\u00ed (12\/12)
Hidradenitis suppurativa v kone\u010dn\u00e9m d\u016fsledku vy\u017eaduje komplexn\u00ed a personalizovan\u00fd p\u0159\u00edstup. Kombinace l\u00e9ka\u0159sk\u00e9 p\u00e9\u010de, spr\u00e1vn\u00e9 hygieny, zdrav\u00e9ho \u017eivotn\u00edho stylu a psychologick\u00e9 podpory umo\u017e\u0148uje lep\u0161\u00ed l\u00e9\u010dbu onemocn\u011bn\u00ed a omezuje jeho n\u00e1sledky. D\u00edky l\u00e9ka\u0159sk\u00e9mu v\u00fdzkumu se objevuj\u00ed nov\u00e9 terapeutick\u00e9 p\u0159\u00edstupy, kter\u00e9 d\u00e1vaj\u00ed pacient\u016fm skute\u010dnou nad\u011bji. Diskuse o nemoci, z\u00edsk\u00e1v\u00e1n\u00ed znalost\u00ed a vyhled\u00e1v\u00e1n\u00ed podpory jsou prvn\u00edmi kroky k klidn\u011bj\u0161\u00edmu \u017eivotu, a to i s t\u00edmto chronick\u00fdm onemocn\u011bn\u00edm.<\/p>\n","protected":false},"excerpt":{"rendered":"Hidradenitis suppurativa, \u010dasto naz\u00fdvan\u00e1 Verneuilova choroba, je chronick\u00e9 a extr\u00e9mn\u011b oslabuj\u00edc\u00ed dermatologick\u00e9 onemocn\u011bn\u00ed, kter\u00e9 postihuje tis\u00edce lid\u00ed na cel\u00e9m sv\u011bt\u011b, \u010dasto bez spr\u00e1vn\u00e9 \n [...]<\/a>","protected":false},"author":1,"featured_media":4012,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-4011","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog"],"_links":{"self":[{"href":"https:\/\/fakt24.biz.ua\/index.php?rest_route=\/wp\/v2\/posts\/4011","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/fakt24.biz.ua\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/fakt24.biz.ua\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/fakt24.biz.ua\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/fakt24.biz.ua\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=4011"}],"version-history":[{"count":1,"href":"https:\/\/fakt24.biz.ua\/index.php?rest_route=\/wp\/v2\/posts\/4011\/revisions"}],"predecessor-version":[{"id":4013,"href":"https:\/\/fakt24.biz.ua\/index.php?rest_route=\/wp\/v2\/posts\/4011\/revisions\/4013"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/fakt24.biz.ua\/index.php?rest_route=\/wp\/v2\/media\/4012"}],"wp:attachment":[{"href":"https:\/\/fakt24.biz.ua\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=4011"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/fakt24.biz.ua\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=4011"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/fakt24.biz.ua\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=4011"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}